Ignoring The Lion

My ocd evolved quite rapidly from one very specific concern to a spiderweb of relationships to other illnesses, people, places, objects, and experiences. While I wasn't relieving myself in bottles in a dark room like Howard Hughes at my worst, I'd still call it severe. Being housebound for six months qualifies, and I was.

Even eating got to be too challenging; there is always the risk for an unexpected exposure if something doesn't look right or appears to have been tampered with in some manner. For a period of time, I was sleeping on the floor with no blanket or pillow, eating nothing but bottled water, coffee, and snack crackers, and not even stepping out my front door to retrieve packages or mail. The wake-up call came when the "diet" ocd had imposed on me started making me retain fluid in my ankles and my kidneys started hurting all the time from constant dehydration. While I drank the bottled water, it wasn't much. Opening the caps was an exposure for me, and I avoided it until my thirst was so intense it was almost unbearable.

I utilized a broom to reach items placed on the wrong side of the door when mail packages arrived. Literally every single moment of my day consisted of cleaning and washing rituals, and even my sleep was invaded by contamination nightmares. If I came into contact with anything on myself which I believed to be an infection of any sort, a minimum of 4-8 hours of ritual body cleaning and disinfection of the area around me and the area around that would follow.

At my worst, I truly believed suicide was the only way out. I thought my life was over and I was left with an existence of suffering and watching like a ghost as my life, he one I once enjoyed so much, kept going on without me. This was before I experienced the results of response prevention.

If someone had told me five years ago that I'd be living that way, I would have laughed and said, "There's no way in hell I'd ever do that to myself." I completely understand why people have such difficulty imagining why we do the things ocd tells us to do. The worst of it, I think, it the fact that lessening the grip ocd has on me involves reacting to and doing things in such a way that it feels wildly counterintuitive. Common sense says wash if you feel dirty, and our biology has us programmed to react to fear in a certain way. I always say that reducing the ocd's power involves something akin to having a hungry, roaring lion in your living room and knowing that the only way to avoid being consumed is to ignore any urge to respond to the lion or fear the situation causes. Doing anything to placate the lion will only cause it to grow and become angrier. Mindf_ck.

But it is what it is.

I went to sleep last night without washing my hands at all. I didn't plan it that way, but I sat in the recliner feeling like I just needed a break for a moment, then I woke up hours later. I decided to skip the rituals I knew I'd need to go to my bed and sit with the fact that I hadn't washed my hands because it was still a step in the right direction. In all, I slept over 10 hours in the chair. After being awake for two straight days, I guess I needed it. I washed my hands when I got up, but for less than 5 minutes. Feelin' good. In the past, falling asleep with dirty hands might have worked briefly, but it would have been on the floor only and I would have had to spray the floor with disinfectant, change my clothes, and wash any uncovered part of my body as I cannot know what I touched in my sleep. None of that happened, and I don't really feel the need.

The Cold Pool of OCD

Why can't I just stop?

Can I just stop?

How do I stop?

I've come to a few realizations. One is that you can't just stop having ocd. The other is that you must just stop doing ocd. Habituation is jumping into a cold pool; at first, the shock to your body from the cold water is unpleasant. You might have the urge to jump right out of the chilly water and back into the warm air. However, you also probably want to swim and enjoy being in the pool. To get there, you have to wait. You have to allow habituation to occur. If you wait, you'll eventually realize that the water no longer feels uncomfortable. After a few minutes, the water will feel quite comfortable. You will no longer experience the urge to leap out of the pool for the sake of escaping the unpleasantness of the chill.

Now, the water temperature has not changed; the only difference is that habituation has occurred. The unpleasantness, the cues from your brain telling you, "Holy crap, this water is COLD!" have stopped coming. Again, nothing has changed about the situation, the water, or your physical self, per se. Nothing, that is, except habituation. You've "gotten used to" the pool water and you are now free to enjoy whatever activity you jumped into the pool for in the first place. Even if you get out of the pool, say to use the diving board, you will still feel acclimated to the water temperature. Unless you stay out of a few minutes, in which case you will habituate to the air temperature around you. Which is why it is important to keep going back into the pool.

Which is why it is important to keep going back into the places that scare you or make you feel uncomfortable. Avoiding jumping into the pool will not make the water any warmer, and avoiding contamination will not make something any less contaminated.

Habituation also happens much faster if you just jump right the hell into the pool. Easing your way in a little at a time just allows the process to last longer, your mind to consider the coolness of the water longer, your body to experience the unpleasantness longer. The person who jumped in at the same time you started tiptoeing in is already having fun and enjoying the water, while you're still standing there thigh-deep, re-experiencing the shock of the chilly water one step at a time. Whose experience of getting used to the water is likely to be more negative? Who is more likely to avoid the unpleasantness in the future? The tiptoer, of course.

And OCD is the same.

I have the power to either strengthen or take the wind right out of the sails of ocd. Every time I react to an obsessive or frightening thought (i.e. OMG, that red dot is blood!) by washing or performing some compulsion or ritual, I am telling my brain that it was correct in its assessment of the risk. In doing this, my brain takes my action as confirmation, and the compulsion is deemed "necessary" in the future. An unrelated pair of things becomes related, and OCD gains strength and validity. Now all red spots are dangerous and require a decontamination ritual - even if they're easily recognizable as simple polkadots in a pattern on a dress.

I went to sleep two nights in a row with no soap & water handwashing. None. I did briefly wipe my hands with a cloth, but that was it. Will this continue? Likely not quite yet. But I am hoping it will help me break the 4-hour handwashing ritual that nightmares are made of. Time will tell. And meanwhile, I will keep reminding myself of the cold pool.

Logical Brain vs. OCD Brain

It's so easy to backslide. And to make excuses. And to be in free fall before I even know what the hell hit me. I am becoming more adept at putting the brakes on. And it never ceases to amaze me how something that has me at a 95/100 on the ocd fear scale can lose the power to frighten me if I simply encounter something else that puts me into fear mode. That realization is helping me get some perspective on the degree to which ocd has control over my thoughts and feelings.

Blood and anything which looks skin-like are the two things I struggle the most with. Well, those and public areas which are wet. If I am in public and suddenly part of me gets wet, the fear that grips me is crippling. My most recent blood freakout exposures were a used item I ordered and a bag from the grocery store. There was a drop of what could only be (at least in my mind) blood on the ordered item, all rusty and droplet-shaped and there as if to challenge me. And second, what appeared to be a light smearing of blood on the grocery bag. I'm absolutely ashamed of how many groceries I threw away. I can fight a lot of things, but blood isn't one of them. The ordered item also found its way to the trash. This disorder, between cleaning supplies, ruined clothing from cleaning solutions and excessive washing, and things that just don't pass inspection and end up garbage, is a sickening financial burden.

I miss my life. I think of how I used to be, all of the things I used to do. Now, simply getting some sleep is a challenge. I often stay up all night because dealing with the bedtime routine where I simply wash my face and hands and brush my teeth is something which can turn into an hour-long mentally torturous mess if I do the least little thing wrong. And while I know that ERP is the absolute surest way to freedom, it is so counter-intuitive. Instinct is a damn strong thing. We are hard-wired for self-preservation and avoidance of danger. The stupid ocd is sending false messages to the danger centers of my brain, which in turn alert every other part of me, so the whole sensation becomes extremely real. And very powerful. Fighting my whole body as it screams DANGER feels like holding my breath when I need to breathe and expecting that I will receive all the oxygen I need by doing so; there are very real physiological urges there, and my brain doesn't seem to be able to easily make sense of why it should ignore these particular signals. My brain does not know they are false. Well, my logical brain knows they are false, but the part of my brain that is in charge of the fight-or-flight response doesn't know.

Nothing like realizing people have had two babies in the time you've spent mostly inside your house doing nothing at all because you're too afraid you might get contaminated if you do anything else. I think part of me is still waiting for this to go away, just the same way it seemed to sort of happen all at once. I don't believe that will happen, but it sure would be nice.

For now, I fight on.

Battles In The OCD War

I often read the blogs of others and think how simple their lives are, even the more complicated ones. These, of course, are not OCD blogs I am referencing. They mention going to the store so casually, or going to their child's school as if it were nothing. That used to be me. I could do a billion things in a day (okay, as much as time allowed) and think nothing more of it than how accomplished I felt. I miss that desperately. I keep thinking I should just be able to decide to be like that again and do it.

And, you know, it probably is kind of like that. Deciding to live my life the way I used to, just doing what I used to do. In fact, that is probably exactly what needs to happen - it just won't be any kind of easy. I seem to expect easy, like just deciding to live my life like I used to should erase all of this other nonsense (i.e. obsessions, compulsions, fear, anxiety). Where I have to get to is the point of understanding that, at first, my life might function as it used to, but it will not feel the way it used to. There will be tremendous anxiety and fear attached, an overwhelming desire to perform compulsions, and obsessions that threaten to flood my mind to the point of crowding out everything else.

I cannot give in. Every time I give, even the slightest bit, I let the rope slip toward my opponent in this tug of war for my life and sanity. And even the smallest advantage may be all the bully needs to yank that rope hard enough that I land face down in the mud, defeated for the day. Though, even when that happens, I must remind myself that OCD may have won the battle, but I am still in it to win the war.

OCD: The Invisible Fence

I am a person who uses a lot of metaphor to describe how I experience the world. Never has an experience been so rich with metaphor as what I have been through with OCD. While each component has its own subset of descriptives, on the whole I compare having OCD to being a dog in a yard with invisible fencing. There is the illusion of freedom; life is right there, all around me, within my reach, I often think to myself. Yet, one little step outside of the prescribed OCD boundaries (i.e., the fenced-in area that my life has become), and I get a very uncomfortable reminder that my illusion of freedom is just that - an illusion.

The invisible fence of OCD is one of the most challenging and depressing aspects of the disorder for me. I realize that, if I merely thought differently, all of that could be mine. And I remember what it feels like to have it. But that is just like me; I want things accomplished now. I've had some critical epiphanies about OCD and how to manage it, so it should just be done now. If only it were that easy.

There is a way to escape the yard. I am searching diligently for the way out. Knowing what is beyond the invisible fence is both inspiring and depressing. I want it, and that motivates me. But I realize how simple it is for everyone else and how difficult it is for me, and that is really a downer.